I'm just wondering if there is anyone else here who suffers from Lichen Sclerosus, specifically on the genital area? I've been diagnosed with it, but my case isn't very severe. I've been using prescribed creams to help lessen the symptoms, though I've heard that they can't entirely cure them.
I've also heard that it can cause women to be unable to have sex (it can cause scarring that can cause the clitoris to disappear, the labia to shrink and the entrance to the vagina tighten). This is very frightening to me!!
Is there any tips or knowledge you can share with me about this disease? What are your thoughts about Lichen Sclerosus?
I don't have LS, but I have another chronic genital pain disorder.
You'll be glad to know that LS can clear up nicely with a topical corticosteroid cream; after initial treatment, all that's required is maintenance applications per your doctor's instructions. Some also prescribe an estrogen cream to help repair and re-plump the vulvar skin, which some women find helpful.
Don't worry; severe scarring of the vaginal opening, fusion of the labia, and covering of the clitoris occur only in severe cases that go without treatment. In most cases, once the LS has mostly cleared, surgical treatment can restore normal vulvar function.
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