I'll try to make some searches about it to see if I can't find anything on the subject. (even if you probably had done it already ) I got some knowledge about some of your symptoms but they are basic stuff.
That's totally something I have big interest in (anything medical really) so really it won't take up too much of my time. I'm glad to do it even though I think I won't be of any great help since doctors still haven't found it and they have all the exams results and are far more qualified than any first years med student I think.
But really, I'm interested in doing that search anyway so if I find anything important that might guide you I'll tell you.
I'm sure you'll be able to find something, cool87. Remember both of you, that just because they have "Dr." in front of their names doesn't mean they know everything. In fact, docs goof up a lot more than they want to admit. We've just been trained to blindly trust the "experts" in all things that they say. What is your gut telling you, leabug? I'm sorry to say I've never heard of a condition such as yours, though I do occassionally get canker sores from time to time and have come to the conclusion that (for me, at least) they're caused by stress or high levels of acidity in my mouth.
If the doctors can't tell you anything, I would recommend going to a certified herbalist, a holistic practitioner, acupuncturist, etc. And see what they say. I find that people who have turned to these older paths of medicine get actual results and effective treatments in contrast to regular doctors that haven't been able to give them any answers.
Posts: 159 | Registered: Jan 2006
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Unfortunately, looking up symptoms on the Internet is going to help your condition much, much less than a doctor with the necessary equipment can.
I completely understand your frustration, leabug; it sounds awful to deal with. There's nothing wrong with researching on the Internet just as long as you take it all with a grain of salt, and print and bring any info that you think is relevant to your doctor's appointment to get his/her opinion.
Nobody can say for sure what's going on, but we can offer support. Has your doc talked about ways to manage your symptoms until they do find a cause?
Posts: 4636 | From: USA/Northern Europe | Registered: Oct 2005
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Yeah, we've talked about managing symptoms- for the gout and anemia I'm watching my diet and water intake, as well as taking NSAIDs for the swelling and pain, and for the canker sores I've been given an antibacterial mouthwash which seems to be helping them from getting really bad; the rest, like weight loss and the bumps, just have to be "sucked up" for now.
Luckily my doctor had all the same suspicions I had based on internet research, and we've systematically ruled out most of them... we're starting to suspect something being wrong with my digestive system, since the ultrasound I had turned up no other problems.
Actually, Gwaihir, I've wondered about seeing a naturopath- I have lots of friends who seem to have had great results, even though they've had to take gross herbal elixirs and such
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