Hey everyone Because I haven't seen many posts concerning endometriosis, and because I am eighteen, and I have endo, I thought I would start a post for people with it (if there are any others, I just assume there must be lol) Something I have noticed about endo, is that not very many people seem to know about it, so here's my little bit on what it feels like to be ME with endo. Obviously, i cant say what sue down the street feels like, but here are some things that have personally affected me. I was diagnosed when i was 17, because over a period of about a year (16-17), things got OUT OF CONTROL. What I mean by that is my period was last THREE WEEKS. I would go through stages where I would lie awake until three or four in the morning, and know I was supposed to get up for work at five, and know it was just not in any way possible, going to happen. But, the thing about having that kind of pain, that on-the-floor-in-the-fetal-position kind of pain, where you're not really sure what you're going to do, but you're really, really, sure that moving is not going to be something that you're going to be doing in the next few hours, is that you actually get to know your body really well. You start to realize when you can move through and keep working on stuff, and when it's time to take some pain meds and back off for a while. The best news about endo is that there are ways to manage it. Right now I'm on BC pills for hormone therapy, and have had a couple of ultrasounds to check things out. I can't say I've been glad to have endo, because it has made some things more challenging than others, but all in all, with a good doctor and supportive friends/family it's really manageable, or at least it has been for me. I'd be really interested in hearing other young women's experiences with endo, along with any magic tips you might have (lol, i'm really not sure there ARE any magic tips to this, but I'm always hopeful!) or any stories and whatever anyone wants to share. As for me, I have my period today, and it doesn't last three weeks anymore (thank goodness) but is more like 4-7 days, maybe 10 on a bad month. I've been almost pain free for the last few months, and my lower back muscles are feeling pretty bruised and swollen (actually, I can see thee swelling, but with my heated back pad and some tylenol, it's nothing unmanageable. Sorry for the novella, I just feel like while there is lots and lots of stuff out there for older women, stuff for teens/YA is a little more scarce!! Thanks Lauren
I am also a young woman in her early twenties who was diagnosed at 18. I too had the unbearable fetal-position pain, and that is what made me go to the doctor. I had always had very heavy and long periods but the pain didn't really start in until later. At first it was mostly extreme stomach cramps, but then I started having intense back pain and pain at the tops of my thighs. My mom also suffered from endometriosis her whole life and had trouble having children because of it. My doctor put me on birth control which helped me tremendously, and of course I supplement that with advil during that time of the month. I also found that heating pads help my pain as well.
I understand what you're going through and I've missed school and work because of it before. Fortunately, people have been understanding.
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