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Author Topic: 3 months of this...?
Alergnon
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I have a specific question well basically questions that relate.

What does it mean when you have your period at the same time every month, that lasts 1-3 days, than stops for 24/hrs to 48/hrs and you get blood clots that are dark, brown, sometimes light mean but this has gone on for 3 months and during that time, before period started breast got swollen, lump that becomes a massive lump all over, slightest touch and your breasts feel like knives cut through and after a few days, your breasts go back to normal but feel swollen slightly? and the blood clot expel for 2-5 days after your period has ended?

I've been getting cramps before and some during my period, nothing painful just, pain?

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Robin Lee
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As you know from talking with us before, hormonal changes and menstrual changes aren't unusual.

None of us can tell you what all of these symptoms mean. Considering your medical history, and the fact that you're having a lot of painful symptoms, I advise you speak to a healthcare provider about this, explaining the symptoms exactly as you have here.

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Robin

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Alergnon
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I have. And nothing happens. I should have seen a doctor but honestly, I feel it's not a issue so I deal with it, because I feel they think I am fine, that basically is what comes out of it, so I deal with it. I have brought it up, before, my doctor isn't worried in less I missed a period for 3 months, I feel weak to talk about what I feel inside and my "problems" to health care providers, it's sad. I get the same response over and over... so I deal with it as best as I can.

Sorry to bother...

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Robin Lee
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Can you be clearer about what you mean by nothing happening when you talk to healthcare providers about this? Are you telling them that you're in a lot of pain? Have they prescribed anything or ordered tests for you?

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Robin

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Heather
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You know, if you want my take on this, this sounds in part like a pretty normal menstrual variation, but also like you might be dealing with some PMS (the breast pain).

We've had a lot of talks about you and using some kind of birth control method, and this is one more way in which a hormonal method -- or a Mirena IUD, depending on what your doctor for your cysts suggests -- could help you out a lot.

I know some providers have prescribed at least one method for you in the past (the patch, I believe?), which you didn't follow up by using. Personally, I'd say giving a method like that a shot is one way you could really take care of yourself here, and not only give yourself protection you've needed for a long time, but probably help with all of these symptoms and issues you're posting about here.

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Heather Corinna, Executive Director & Founder, Scarleteen
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Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead

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Alergnon
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What I mean when I talk to healthcare providers about this, it seems like it is normal to them, too me it isn't so they don't really focus on it. My doctor all she wants me to do, is for me to shove anti-depressants in my system because she thinks, and everyone else, I am "unstable" or may "get very low moods," or that, "my moods are up and down," when all they know, is my past, and not how I am today. Besides that point, I feel they focus on that, just like the specialist said to me, "once I get the results from the CT Scan and everything is clear, I'm going to discuss pain medication for you."

Also, I made a doctors appointment tomorrow. Since I have my benefits, I am more likely to go for the birth control, I have this voice or something, that is basically scared to try any medication because of all my issues, seems lame of an excuse, me thinking it will do something bad to me or make things worse.


I feel, if I take medication it is doing something to me, something good but then after it effects my body in a negative way, I got this from eating where it hurt me, trying to break out of that process of thought and I should stop looking at medication as bad.

About the cysts, maybe I'm experiencing them again, because I felt the same pain and what not while at work and it dung into my lower back, pinched my front below belly button on the right and made me sick to my stomach, and I had to dash to the washroom maybe 8 times during work.

Maybe I need to suck it up and deal with it... that is basically what I've been doing, telling myself, this is normal and deal with it.

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Heather
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Can I ask why you think an educated healthcare provider would suggest medication that would make things worse for you rather than better?

I hear you second-guessing: can I also ask why you feel that your feelings, which don't strike me as based in education or fact, but in fear about medications on the whole that I just don't feel is very informed, are more sound than their education and expertise?

If so, then I have to say, I'm not sure why you keep asking about/for medical information and seeking out help with healthcare, since if it's not something you trust -- medicine as a system and approach -- it really doesn't strike me as making any sense to even keep talking about or pursuing. Do you understand what I mean?

If not, let's try this: if you go for helathcare, or ask for help with it here, but won't cooperate when it's provided, or trust the education of those educated IN that system, than it's fruitless to pursue. (This might also be part of why providers seem to be getting frustrated with you).

By all means, when we're patients, we can have questions about given medications and consider them. But if you won't try taking ANYTHING that is prescribed or suggested for you, then for sure, providers are going to have a pretty short fuse for you, since that's like asking for food then turning down every meal, and you're also going to keep feeling like the medical system isn't serving you, because you're not willing to follow through with the things that are suggested, which is the part on you as a patient.

Healthcare isn't really about doctors doing FOR us, or fixing things for us so much as us working WITH them, which certainly includes taking or at least trying approaches and/or medications they prescribe.

So. Should you choose that you don't want to take care of yourself, or follow through with trying things that providers suggest, you get to do that. Personally, I don't think that's any way to take care of yourself, but that's my opinion: you get to have your own and make your own choices.

But I'd say if your choice is to say no to all of these things providers and suggesting or we're suggesting and instead "suck up and deal with it," then it really isn't a sound use of anyone's time or energy -- yours, ours or that of any healthcare providers -- to keep discussing your medical or potential medical issues.

Do you get what I'm saying here?

[ 06-10-2013, 12:45 PM: Message edited by: Heather ]

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Heather Corinna, Executive Director & Founder, Scarleteen
About Me • Get our book!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead

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Alergnon
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Is there such thing as phobias to medications, because it's like when someone doesn't like spiders that fear it will kill them or something, I feel that way about medication, not that it will kill me and I am trying to break out of this phobia.

And to answer your first question, I did refuse medication after taking two different kinds of, explained to the doctor it's not working and it's making me worse. She said it was okay but I should still take the one and not take the other. Go back another time, she still has her opinion on me taking that medication. Maybe she knows it works for many of her patients but it doesn't for me.

I know a doctor can't fix us, they try to figure out what is going on, and that is what I am scared of, leading back to the phobia.

Heather, anther thing that I don't like to do, is ask a doctor to run tests for me... I mean, people tell me to ask my doctor to run a test, but I don't. I can't be like, can you run A and B and C tests for me, I don't want to sound like I am obsessed that something is wrong. I just explain what I feel and basically how it's effecting me.
How do you ask your doctor to run hormonal tests? All I say is I don't know what to do, and it's bothering me. And with this issue of my periods (I think it's an issue because this hasn't happened to me like this before) I'll express that, just I can't tell a doctor what to do.

I don't know, maybe for the last 3 months what is happening is normal. That, maybe things are different. That, bleeding for 1-3 days, having it stop for a day or two, then your expelling bloody strings, and clumps and when you get off the toilet there are strings of blood floating, toilet is completely red/pink and small circles of blood, I mean, the second month of this, had a few that were a dime sized, and it just went on for maybe 2-5 days.

Maybe I am anemic from loss of blood during my periods, maybe I should ask about this, maybe this is all normal. That my last one was watery lasted a day and half, then got blood clots, nothing massive, just looked like tissues of red/brown stuff.

I understand where you are coming from, but I have had my doctor tell me to try to manage it, a specialist that told me I need to learn ways of dealing and coping with the pain, and yet, I am trying to.

[Frown]

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Alergnon
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I'm heading off to bed for the night, work early in the morning. Hopefully tomorrow when I see the doctor maybe she can help me or something on those lines. May ask for a referral to a OB/GYN if she doesn't know what is going on, or if it's out of her practice of scope, like beyond what she can do, I have no idea.

Thank You.

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Robin Lee
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Hi Alergnon,

How did the appointment go?

When you tell your doctor that the medication isn't working for you, are you specific? If you only say that it's making things worse, the doctor can't know what you're talking about.

In terms of a medication phobia, if this is what you think you have then it's something you need to talk with a qualified healthcare, preferably mental healthcare, provider about as you would need to do for any sort of phobia. Did you follow up on rescheduling the therapy appointment that you cancelled a few weeks ago?

Let's try this: What do you want to happen right now in terms of managing these menstrual changes and discomfort? Are you willing to swallow the fears you have about medications in order to be in less pain?

Frankly, what's I'm hearing here is that you want the doctor to do all the guesswork for you and you don't want to have to be an active part of your healthcare process. That's a scary thing, and, as Heather said, it certainly is your right to not actively participate in your healthcare. However, Alergnon, something has to give here. If you want something to change, you need to be willing to take a risk, even if it makes you feel fear. If you're not willing to take that risk, that's okay, but it means that nothing changes.

In terms of how to ask your doctor for tests, you just ask. You don't worry about what the doctor will think of you, because if you worry about what everyone thinks of everything you say or do, you'll never get to say or do anything. [Smile] If the doctor refuses, you deal with that then.

So, since these menstrual changes are bothering you so much, what is your plan for dealing with them? Your plan might include: Going back to therapy, and engaging wholly in that therapy, including talking about your fear of medication. It might include asking your doctor for more tests. It might include taking the birth control that has been prescribed for you and taking it consistently and properly. It might include all of these things and I would advise that it does.

My point is: You need to choose something, a course of action, and stick with it.

--------------------
Robin

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Alergnon
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My appointment went well. We talked a lot. She ordered some urine and blood tests to be done, which I got done. She was concerned because when she examined my lower abdomen it hurt, she asked if I feel pain, I said yes, anyways, she said sometimes appendix can start there and move to the right, she informed me and if I have any pain to go to the walk-in right away. She also mentioned a bladder infection, but she just informed me, basically to not ignore pain in that area because it can be serious.

She's wondering why I have the pain, she is checking for pregnancy, some levels of some sort and urine infections as well and my levels in my system.

I told her I just got on benefits from work and I am going to get the Patch. I feel lame, I go to my e-mail and I saw a news article and it freaked me out, because it's in Canada and yes I know it is not the same brand as the birth control I will be taking, but it's unsettling. May I link this link? http://ca.shine.yahoo.com/yaz-yasmin-birth-control-pills-suspected-23-deaths-144527681.html

She also is going to run tests to see the cause of the blood clots after my periods to see if there is any concern.

I have an appointment with the therapist tomorrow late afternoon.

Tomorrow after work, walking to the drug store to get the Patches.

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Heather
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If these users died from blood clots, that means they probably were not sound candidates for that method in the first place, and didn't do the proper screenings first before it was prescribed.

But most of the time, with things that this, what winds up coming out in the wash is that deaths were unrelated. However, this, again, is a concern you can talk with your healthcare provider about.

That said, I feel confident you have had more than enough healthcare already that anyone prescribing the patch to you would know if you had any health issues that did not make it safe for you. As well, this isn't the patch, anyway, nor is it the pill in general: it's one brand. Too, do know that pregnancy presents not only all the same cardiovascular risks as a pill or patch does, but does so at much higher levels.

So, risking pregnancy rather than taking something to protect yourself against it for fear of blood clots just isn't at all sound, see?

But like Robin suggested, if you are afraid to take something rather than not taking it, the thing to do is have a conversation with your prescribing physician. Since you see a therapist, this is something you should bring up there, too.

--------------------
Heather Corinna, Executive Director & Founder, Scarleteen
About Me • Get our book!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead

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Alergnon
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I got over that fear of blood clots and people dieing from it.

I got the patch and when I get my period that is when I am applying it, than same day week after replacing it and putting a new one on. I'm actively trying to be my best, my doctor has ordered an ultrasound because I was in the hospital Friday and the ER doctor suggested out-patient ultrasound. So, my doctor is checking for ovarian cysts or whatever is causing me so much grieve, hopefully I get some answers.

Also, in the fall I had asked for a counselor and I now have a intake soon, this isn't limited time, it's free and well, I think it will help me more. [Smile]

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Heather
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Fantastic. [Big Grin]

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Heather Corinna, Executive Director & Founder, Scarleteen
About Me • Get our book!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead

Posts: 68232 | From: An island near Seattle | Registered: May 2000  |  IP: Logged | Report this post to a Moderator
   

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